My oldest son has severe autism, is non verbal, and has been working with a communication device to help him get his voice and it has been a slow road but his frustration has been cut down a lot.
However, when I'm not with him, he is still in the big bad world alone with very minimal communication skills. So I trust everyday that what I do and who he is with is aware of that huge safety factor. Sometimes I feel confident in the people around him at school, and sometimes I'm stunned because it doesn't seem like they have ever heard of autism before.
|Behavior is Language|
So I have to go now, and ask, and beg, for my childs safety that he get a personal 1 on 1 aide to be with him all the time. What can happen is unspeakable. His school was built in the era, of love, peace, and Bobby Sherman and there is no fence and the campus is completely open, which was probably a very poor choice of locations when the district was choosing the location for the Special Education Children. So I have to prepare myself for what I expect to be a battle, because really it is always about money, and someone is going to pull the I don't have enough money to provide him a full time aide. Well those EXCUSES are no longer acceptable for me. The school districts have plenty of money, they just have to choose not to waste and abuse the funds they have, because that is the problem (and a whole completely different blog post).
So begging for my child's safety is what is going to happen this week, and if we don't get what is going to keep him safe and a productive non disruptive student to his classmates, I will have to find a special education advocate, and fight the school and the district and ultimately win. Because the unspeakable game here is that the districts want to give you as little as possible, hoping that you won't fight, and putting so many hoops in front of you that they hope you give up. I do believe I have a slam dunk case, and will take it as far as it needs to go. He's my kid there is no limit to the lengths that I will go to help him, I will turn over every rock and move mountains to make sure we get him where and what he needs to be a successful student.
Beautifully written my warrior mama friend! Proud of all you do.ReplyDelete