Dear Franklin,

You see, there is no instruction manual for typical
children, and there is absolutely no manual to maneuver your way through the
labyrinth of life after you are labeled
“special needs”.
There are so called “professionals” that really have a passion for
children like you and want to help, but are corn hold because of a horrible
defective system. There are so
called professionals that are out for a money grab, and don’t really care if
they help you or not, they just want to get their check. There are professionals that pull at
the heartstrings of families that so desperately want help, with no guarantees,
and very large expenses. I’ve
pretty much lost faith in the professionals – it has been the mommies, and the
daddies, that have lifted us up, and helped us and guided the families in how
to survive the jungle of special education. And for those families we will never be able to express our
true gratitude, except to pay it forward to the newly diagnosed families.
Mommy took the professionals at their word that they had
your best interests at heart. I
believed them when they said you were getting an appropriate amount of services
for your level of cognition.
(WHICH WAS A LIE)
I believed
them, when they said this might be as good as you get. (WHICH IS NOT TRUE)
I believed
them when they said, you may want to consider just making him comfortable this
might be all there is for him. (WHICH IS UNACCEPTABLE)
I believed
them, when they said you were not teachable because your behavior was too
challenging. (YOU ARE NOT THE
PROBLEM, THE PROFESSIONALS ARE THE PROBLEM)
I believed them
when they tried to make me doubt you and what is inside, and lost sight of what
an amazing little boy you are.


I love you baby, and I will never stop standing strong for
you.
Mommy